Well, its official. Rhyan's head shape has not improved and she is still in the "severe" category with an 18.8mm difference in the symmetry between the right and left sides of her skull. Her facial symmetry is still very good at 97% (a 1% improvement from last month) which is nice. Her torticollis is improving according to Courtney, her physical therapist. Last month, her range of motion for turning to the left (to look over her shoulder) was 60 degrees. This month its 70! Thats GREAT! And her tilting has improved from 55 to 60 degrees. Courtney was excited about this because she says that 60-65 degrees for a tilt (touching ear to shoulder) is a "normal" range. So this is good news! Courtney was, however, concerned with Rhyan's back which seems to be curving a little more. We had seen some improvement last month with her back muscles being a little more even in strength, but we are guessing that because she's doing the exersaucer and bumbo seat more, she's naturally curving the way its most comfortable and making her back a little worse. We were doing our best to keep her off of her head in attempt to help the molding, but since that's obviously not working, we'll go back to working on her back more.
We are going to appeal the insurance which says they wont pay for her helmet, so please be praying that someone who is really compassionate or really stupid reviews her case. In either situation, we'd just appreciate it being paid for. We are going ahead and paying for it out of pocket to make sure we get the "in cash up front" 20% discount, bringing the total down to a little over $2600.00. We're thinking... who need's a college fund anyways? Pshhhhhh...
The helmet is light purple with butterflies on it. And hopefully with her being so young when she gets it, she wont mind it. She'll wear it 23 hours a day for 3-4 months.
On my end, i've shed all the tears over this situation that i'm going to (i hope). No, i obviously dont want her to have to wear a helmet. But the fact is, its temporary. It'll help with her torticollis. It'll make her even more beautiful and perfect than she already is. Is that possible? Probably not in my eyes, but realistically, yes... her head could use some help :-) So, we're getting it for her.
5 comments:
I am thinking about you and praying for you! It's so hard to see our babies like this :( You are doing the right thing though ;)
Baby Rhyan,
Your Momma & Daddy love you so much that they would do all they can to provide you with all the best they can give. They bring their burdens to the Lord, who loves you even more than they do!!!!--- if you can believe that!
We love you and pray that you will adjust quickly and beautifully to your temporary butterfly princess "crown." The Lord will provide.
In Him,
The Bayne's
at least it's a pretty helmet!! love y'all!
She is precious! Bruce and I will keep you in our prayers. As a new mom too, I can imagine some of the emotions you must be feeling when you have to deal with medical situations like this. God is good an I know he will take care of you guys! Let me know if you ever need to get out...I am sure Hayden would love to meet a new friend. Take care!
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